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Table 1 Clinical and demographic characteristics of survey and interview participants

From: Identifying the unmet information and support needs of women with autoimmune rheumatic diseases during pregnancy planning, pregnancy and early parenting: mixed-methods study

   Survey (n = 128) Patient interviews (n = 22)
Variable Category Number (%) Number (%)
Primary diagnosis Systemic Lupus Erythematosus 42 (32.8) 7 (13.6)
Rheumatoid Arthritis 23 (18) 3 (31.8)
Vasculitis 23 (18) 6 (27.3)
Non-specific inflammatory arthritis/connective tissue disease 18 (14.1) 4 (18.2)
Idiopathic Juvenile Arthritis 9 (7) 1 (4.5)
Psoriatic Arthritis 7 (5.5) 1 (4.5)
Other ARD 6 (4.7) 0 (0)
Duration of illness Up to 1 year 6 (4.7) 2 (9.1)
1 to 5 years 41 (32) 6 (27.3)
More than 5 years 79 (61.7) 14 (63.6)
Missing data 2 (1.6) 0 (0)
Family situation: (number and % responding ‘yes’) Have children already 71 (55.5) 13 (59.1)
Thinking about getting pregnant in the next five years 77 (60.2) 7 (31.8)
Currently trying to get pregnant 9 (7) 2 (9.1)
Currently pregnant 8 (6.3) 2 (9.1)
Have been pregnant in the last 5 years 63 (49.2) 11 (50)
Education Have a university degree 71 (55.5) 16 (72.7)
Employment status Full time paid work 51 (39.8) 8 (36.4)
Part time paid work 38 (29.7) 11 (50)
Unemployed & seeking work 4 (3.1) 0 (0)
Not employed & currently not seeking work 25 (19.5) 2 (9.1)
In full or part time education 6 (4.7) 1 (4.5)
Rather not say 4 (3.1) 0 (0)
Relationships Married, civil partnership, or living together 107 (83.6) 18 (81.8)
Other 21 (16.4) 4 (12.2)
Missing data 2 (1.6) 1 (4.5)
Ethnic group British, English, Welsh, Scottish, or Irish 114 (89) 19 (86.4)
Other: non-European 12 (9.4) 2 (9.1)
Other: European 2 (1.6) 0 (0)
Missing data 1 (0.8) 1 (4.5)
  Mean (SD) Mean (SD)
Age Range: 21 to 48 years 32.75 (6.1) 33.86 (5.3)
Disease-related Quality of Life (AIMS2-SF normalised scores) Physical 3.52 (1.8) 2.56 (1.38)
Symptoms 5.41 (3.22) 4.24 (3.51)
Affect 4.57 (2.4) 4.12 (2.42)
Social 5.74 (1.76) 6.02(1.64)
Role 7.79 (3.0) 7.29 (2.80)