|  | Survey (n = 128) | Patient interviews (n = 22) |
---|---|---|---|
Variable | Category | Number (%) | Number (%) |
Primary diagnosis | Systemic Lupus Erythematosus | 42 (32.8) | 7 (13.6) |
Rheumatoid Arthritis | 23 (18) | 3 (31.8) | |
Vasculitis | 23 (18) | 6 (27.3) | |
Non-specific inflammatory arthritis/connective tissue disease | 18 (14.1) | 4 (18.2) | |
Idiopathic Juvenile Arthritis | 9 (7) | 1 (4.5) | |
Psoriatic Arthritis | 7 (5.5) | 1 (4.5) | |
Other ARD | 6 (4.7) | 0 (0) | |
Duration of illness | Up to 1Â year | 6 (4.7) | 2 (9.1) |
1 to 5Â years | 41 (32) | 6 (27.3) | |
More than 5Â years | 79 (61.7) | 14 (63.6) | |
Missing data | 2 (1.6) | 0 (0) | |
Family situation: (number and % responding ‘yes’) | Have children already | 71 (55.5) | 13 (59.1) |
Thinking about getting pregnant in the next five years | 77 (60.2) | 7 (31.8) | |
Currently trying to get pregnant | 9 (7) | 2 (9.1) | |
Currently pregnant | 8 (6.3) | 2 (9.1) | |
Have been pregnant in the last 5Â years | 63 (49.2) | 11 (50) | |
Education | Have a university degree | 71 (55.5) | 16 (72.7) |
Employment status | Full time paid work | 51 (39.8) | 8 (36.4) |
Part time paid work | 38 (29.7) | 11 (50) | |
Unemployed & seeking work | 4 (3.1) | 0 (0) | |
Not employed & currently not seeking work | 25 (19.5) | 2 (9.1) | |
In full or part time education | 6 (4.7) | 1 (4.5) | |
Rather not say | 4 (3.1) | 0 (0) | |
Relationships | Married, civil partnership, or living together | 107 (83.6) | 18 (81.8) |
Other | 21 (16.4) | 4 (12.2) | |
Missing data | 2 (1.6) | 1 (4.5) | |
Ethnic group | British, English, Welsh, Scottish, or Irish | 114 (89) | 19 (86.4) |
Other: non-European | 12 (9.4) | 2 (9.1) | |
Other: European | 2 (1.6) | 0 (0) | |
Missing data | 1 (0.8) | 1 (4.5) | |
 | Mean (SD) | Mean (SD) | |
Age | Range: 21 to 48Â years | 32.75 (6.1) | 33.86 (5.3) |
Disease-related Quality of Life (AIMS2-SF normalised scores) | Physical | 3.52 (1.8) | 2.56 (1.38) |
Symptoms | 5.41 (3.22) | 4.24 (3.51) | |
Affect | 4.57 (2.4) | 4.12 (2.42) | |
Social | 5.74 (1.76) | 6.02(1.64) | |
Role | 7.79 (3.0) | 7.29 (2.80) |