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Table 2 Information and support reported in the online survey (n = 128)

From: Identifying the unmet information and support needs of women with autoimmune rheumatic diseases during pregnancy planning, pregnancy and early parenting: mixed-methods study

Variable

 

All (n = 128)

Women who have children (n = 71)

Women who don’t have children yet (n = 57)

Between group comparisons for women who already have vs. don’t have children

 

Information needs

 

Mean (SD)

Mean (SD)

Mean (SD)

Mean difference

95% CI

P value

 ENAT (Rasch-transformed scores)

Pain

15.4 (4.94)

16.3 (4.84)

14.2 (4.84)

2.13

(0.42 to 3.84)

0.015

Movement

13.7 (4.47)

14.6 (4.30)

12.4 (4.40)

2.23

(0.69 to 3.77)

0.005

Feelings

10.8 (4.44)

11.1 (4.51)

10.5 (4.38)

0.63

(−0.95 to 2.02)

0.431

Arthritis

20.1 (6.49)

20.3 (6.36)

19.8 (6.48)

0.50

(−1.77 to 2.76)

0.666

Treatments

18.2 (8.36)

19.1 (8.15)

17.1 (8.56)

2.02

(−0.94 to 4.97)

0.180

Self-help

16.3 (6.05)

16.3 (6.05)

16.3 (6.11)

−0.05

(−2.20 to 2.10)

0.963

Support

10.6 (3.41)

10.7 (3.34)

10.4 (3.52)

0.33

(−0.88 to 1.54)

0.587

Total

104.9 (30.18)

108.2 (29.20)

100.6 (31.14)

7.51

(−3.12 to 18.15)

0.164

 Reproductive health information needs (single items, range 0–4)

Sex and relationships

1.8 (1.44)

1.5 (1.33)

2.2 (1.52)

−0.67

(−1.17 to − 0.16)

0.01

Contraception

1.7 (1.66)

1.3 (1.56)

2.2 (1.66)

−0.93

(−1.50 to − 0.35)

0.002

Preparing for pregnancy

2.2 (1.76)

1.3 (1.65)

3.4 (1.02)

−2.12

(−2.62 to −1.63)

< 0.001

Increasing chances of pregnancy naturally

2.1 (1.74)

1.2 (1.60)

3.4 (1.02)

−2.06

(−-2.56 to −1.55)

< 0.001

Fertility treatments

1.6 (1.71)

0.8 (1.35)

2.7 (1.53)

−1.90

(−2.40 to − 1.39)

< 0.001

Options for giving birth

2.1 (1.81)

1.2 (1.68)

3.2 (1.38)

−1.89

(−2.44 to − 1.34)

< 0.001

Managing pain during childbirth

2.0 (1.79)

1.2 (1.65)

3.0 (1.43)

−1.79

(−2.34 to − 1.24)

< 0.001

Breastfeeding

1.9 (1.75)

1.3 (1.73)

2.6 (1.51)

−1.26

(−1.84 to −0.68)

< 0.001

Support needs

 

Yes: n (%)

Yes: n (%)

Yes: n (%)

Chi square

 

P value

 Previously had/ currently having

Care planning

73 (57.0%)

45 (63.4%)

28 (49.1%)

2.62

 

0.111

Care co-ordination

62 (48.4%)

33 (46.5%)

29 (50.9%)

0.245

 

0.722

Peer-support

41 (32%)

19 (26.8%)

22 (38.6%)

2.034

 

0.184

Physiotherapy

65 (50.8%)

39 (54.9%)

26 (40.0%)

1.098

 

0.374

Talking therapies

41 (32%)

25 (35.2%)

16 (28.1%)

0.741

 

0.448

Alternative/complementary therapies

30 (23.4%)

18 (25.4%)

12 (21.1%)

0.326

 

0.676

Practical help with daily activities

24 (18.8%)

19 (26.8%)

5 (8.8%)

6.716

 

0.012

 Would like this if available

Care planning

59 (46.1%)

30 (42.3%)

29 (49.2%)

0.946

 

0.375

Care co-ordination

67 (52.3%)

40 (56.3%)

27 (47.4%)

1.020

 

0.374

Peer-support

80 (62.5%)

48 (67.6%)

32 (56.1%)

1.773

 

0.202

Physiotherapy

53 (41.4%)

31 (43.7%)

22 (38.6%)

0.334

 

0.592

Talking therapies

67 (52.3%)

37 (52.1%)

30 (52.6%)

0.003

 

1.000

Alternative/complementary therapies

72 (56.3%)

41 (57.7%)

31 (54.4%)

0.145

 

0.723

Practical help with daily activities

66 (51.6%)

39 (54.9%)

27 (47.4%)

0.724

 

0.477