Skip to main content

Table 2 Information and support reported in the online survey (n = 128)

From: Identifying the unmet information and support needs of women with autoimmune rheumatic diseases during pregnancy planning, pregnancy and early parenting: mixed-methods study

Variable   All (n = 128) Women who have children (n = 71) Women who don’t have children yet (n = 57) Between group comparisons for women who already have vs. don’t have children  
Information needs   Mean (SD) Mean (SD) Mean (SD) Mean difference 95% CI P value
 ENAT (Rasch-transformed scores) Pain 15.4 (4.94) 16.3 (4.84) 14.2 (4.84) 2.13 (0.42 to 3.84) 0.015
Movement 13.7 (4.47) 14.6 (4.30) 12.4 (4.40) 2.23 (0.69 to 3.77) 0.005
Feelings 10.8 (4.44) 11.1 (4.51) 10.5 (4.38) 0.63 (−0.95 to 2.02) 0.431
Arthritis 20.1 (6.49) 20.3 (6.36) 19.8 (6.48) 0.50 (−1.77 to 2.76) 0.666
Treatments 18.2 (8.36) 19.1 (8.15) 17.1 (8.56) 2.02 (−0.94 to 4.97) 0.180
Self-help 16.3 (6.05) 16.3 (6.05) 16.3 (6.11) −0.05 (−2.20 to 2.10) 0.963
Support 10.6 (3.41) 10.7 (3.34) 10.4 (3.52) 0.33 (−0.88 to 1.54) 0.587
Total 104.9 (30.18) 108.2 (29.20) 100.6 (31.14) 7.51 (−3.12 to 18.15) 0.164
 Reproductive health information needs (single items, range 0–4) Sex and relationships 1.8 (1.44) 1.5 (1.33) 2.2 (1.52) −0.67 (−1.17 to − 0.16) 0.01
Contraception 1.7 (1.66) 1.3 (1.56) 2.2 (1.66) −0.93 (−1.50 to − 0.35) 0.002
Preparing for pregnancy 2.2 (1.76) 1.3 (1.65) 3.4 (1.02) −2.12 (−2.62 to −1.63) < 0.001
Increasing chances of pregnancy naturally 2.1 (1.74) 1.2 (1.60) 3.4 (1.02) −2.06 (−-2.56 to −1.55) < 0.001
Fertility treatments 1.6 (1.71) 0.8 (1.35) 2.7 (1.53) −1.90 (−2.40 to − 1.39) < 0.001
Options for giving birth 2.1 (1.81) 1.2 (1.68) 3.2 (1.38) −1.89 (−2.44 to − 1.34) < 0.001
Managing pain during childbirth 2.0 (1.79) 1.2 (1.65) 3.0 (1.43) −1.79 (−2.34 to − 1.24) < 0.001
Breastfeeding 1.9 (1.75) 1.3 (1.73) 2.6 (1.51) −1.26 (−1.84 to −0.68) < 0.001
Support needs   Yes: n (%) Yes: n (%) Yes: n (%) Chi square   P value
 Previously had/ currently having Care planning 73 (57.0%) 45 (63.4%) 28 (49.1%) 2.62   0.111
Care co-ordination 62 (48.4%) 33 (46.5%) 29 (50.9%) 0.245   0.722
Peer-support 41 (32%) 19 (26.8%) 22 (38.6%) 2.034   0.184
Physiotherapy 65 (50.8%) 39 (54.9%) 26 (40.0%) 1.098   0.374
Talking therapies 41 (32%) 25 (35.2%) 16 (28.1%) 0.741   0.448
Alternative/complementary therapies 30 (23.4%) 18 (25.4%) 12 (21.1%) 0.326   0.676
Practical help with daily activities 24 (18.8%) 19 (26.8%) 5 (8.8%) 6.716   0.012
 Would like this if available Care planning 59 (46.1%) 30 (42.3%) 29 (49.2%) 0.946   0.375
Care co-ordination 67 (52.3%) 40 (56.3%) 27 (47.4%) 1.020   0.374
Peer-support 80 (62.5%) 48 (67.6%) 32 (56.1%) 1.773   0.202
Physiotherapy 53 (41.4%) 31 (43.7%) 22 (38.6%) 0.334   0.592
Talking therapies 67 (52.3%) 37 (52.1%) 30 (52.6%) 0.003   1.000
Alternative/complementary therapies 72 (56.3%) 41 (57.7%) 31 (54.4%) 0.145   0.723
Practical help with daily activities 66 (51.6%) 39 (54.9%) 27 (47.4%) 0.724   0.477