Statement | Percentage votes (%) (Available votes = 150) | Topics | Example of PROs Instrument |
---|---|---|---|
Swollen and tender joints and morning stiffness | 10.0 | Symptom | RADAI [6] RADAR [7] |
Joints with pain, swelling and limited range of motion | 9.3 | Symptom | RADAI RADAR |
Patient reported painful swollen joints | 5.3 | Symptom | RADAI RADAR |
Duration of morning stiffness | 4.7 | Symptom | Morning stiffness duration [8] |
Flare up – frequency, severity and length of flare | 4.7 | Symptom | OMERACT Flare core domain set [9] |
How the patient feels - energy level, joint pains | 2.0 | Symptom | PROMIS -short form fatigue [10] |
Duration of morning stiffness | 2.0 | Symptom | Morning stiffness duration |
Increase in joint swelling | 2.0 | Symptom | RADAI |
Features of inflammatory pain | 1.3 | Symptom | |
Correlation between symptoms and physical examination | 1.3 | Symptom | |
Any new symptoms or change since last visit | 1.3 | Symptom | |
Pace of developing new symptoms | 0.7 | Symptom | |
Fatigue compared to prior to disease onset | 0.7 | Symptom | PROMIS short form fatigue [10] |
Sleep patterns | 0.7 | Symptom | PROMIS Sleep Disturbance [11] |
Sleep patterns | 0.0 | Symptom | PROMIS Sleep Disturbance [11] |
Weight loss and energy levels | 0.0 | Symptom | PROMIS Fatigue |
Flare up resulting in visit to Emergency room | 0.0 | Symptom | OMERACT Flare core domain set [9] |
Weight loss or weight gain | 0.0 | Symptom | |
Description of patient’s pain | 0.0 | Symptom | Pain Intensity (numeric rating scale), visual analogue scale [12] |
Ability to perform ADLs/HAQ | 6.7 | Physical Function | |
Function/HAQ score | 3.3 | Physical Function | HAQ [13] MDHAQ [15] |
Impact of RA on activities of interest | 2.0 | Physical Function | PROMIS Discretionary Social Activities [16] |
Ability to participate in recreational activities | 1.3 | Physical Function | HAQ |
Work performance and recreation | 1.3 | Physical Function | WPAI [17] |
Change in ability to do activities | 0.7 | Physical Function | HAQ |
Decline in functional status | 0.7 | Physical Function | HAQ |
Ability to participate in activities | 0.0 | Physical Function | HAQ |
Work productivity | 0.0 | Physical Function | WPAI [17] |
Work stability | 0.0 | Physical Function | |
Myofascial pain vs articular symptoms | 0.0 | Physical Function | |
Presence of synovitis, number of joints, joint tenderness | 4.7 | Physical findings | |
Tender and swollen joint count | 3.3 | Physical findings | |
Number of swollen joints and overall mobility | 2.7 | Physical findings | |
Number of tender joints | 2.0 | Physical findings | |
Joint changes due to destruction or activity | 0.7 | Physical findings | |
Articular deformities | 0.0 | Physical findings | |
Patient assessment of disease activity | 3.3 | Response to treatment | |
Patient feels need for medication adjustment | 1.3 | Response to treatment | |
History of RA medication use | 1.3 | Response to treatment | |
Adequate dosage of RA medication per patient | 0.7 | Response to treatment | |
Improvement after change in medication | 0.0 | Response to treatment | |
Toxicity from RA medications | 2.0 | Side effect | |
Medication tolerance | 1.3 | Side effect | |
Tolerance and adverse effects | 1.3 | Side effect | |
Infections or hospitalizations | 0.0 | Side effect | |
Inflammatory markers | 2.0 | Tests | |
Positive rheumatoid factor and anti-CCP antibodies | 2.0 | Tests | |
X-ray Changes | 0.0 | Tests | |
History of bone erosions | 0.0 | Tests | |
Compliance to current medications | 2.0 | Adherence | |
Barriers to medication compliance | 2.0 | Adherence | |
Issues with administration of RA medications | 0.0 | Adherence | |
Frequency of missing RA medications | 0.0 | Adherence | |
Compliance and regular Refilling of prescriptions | 0.0 | Adherence | |
New or existing comorbidities | 2.0 | Comorbidities or medical history | |
Past medical history impacting medication choices | 1.3 | Comorbidities or medical history | |
Tuberculosis, liver disease, Congestive heart failure or malignancy | 0.0 | Comorbidities or medical history | |
New comorbid conditions | 0.0 | Comorbidities or medical history | |
Sleep issues or Cardiovascular risk | 0.0 | Comorbidities or medical history | |
Smoking | 0.0 | Comorbidities or medical history | |
Alcohol consumption | 0.0 | Comorbidities or medical history | |
Immunization status | 0.0 | Comorbidities or medical history | |
TB exposure | 0.0 | Comorbidities or medical history | |
Smoking, alcohol, cholesterol levels and blood pressure | 0.0 | Comorbidities or medical history | |
Immunization status | 0.0 | Comorbidities or medical history | |
ILD from RA | 1.3 | Organ involvement | |
Organ involvement from RA | 0.0 | Organ involvement | |
Steroid dose and frequency | 0.7 | Pain Medication | |
Opiate use | 0.0 | Pain Medication | |
Steroid use between visits | 0.0 | Pain Medication | |
Use of acetaminophen and NSAIDs | 0.0 | Pain Medication | |
Use of prednisone and NSAIDs | 0.0 | Pain Medication | |
OTC nutritional supplements | 0.0 | Pain Medication | |
Change in financial status or health insurance | 0.0 | Access to Care | |
Financial limitations caused by RA | 0.0 | Access to Care | |
Finances, transportation, insurance coverage | 0.0 | Access to Care | |
Impact of contraception on RA medication | 0.0 | Contraception | |
Current use of contraception | 0.0 | Contraception | |
Impact of RA on patient’s relationship | 0.0 | Social aspects | |
Current or planning of pregnancy | 0.0 | Social aspects | |
Patient’s ability to manage disease | 0.0 | Social aspects | |
History of depression | 0.0 | Social aspects | |
Hobbies/sports | 0.0 | Social aspects | |
Family responsibilities | 0.0 | Social aspects | |
Planning parenthood | 0.0 | Social aspects | |
Social history and change in job | 0.0 | Social aspects |