Skip to main content

Table 2 Recruitment and characteristics of the participants in the four focus groups

From: Patient-Initiated Follow-Up (PIFU) as reorganized support for increased patient involvement – focus group discussions among patients’ with inflammatory arthritis

 TotalFG1FG2FG3FG4
Agreed date of participation, n37a810812
 Notified cancellationb101135
 Did not show up on the dayc31011
Participants’, n256946
Diagnosis, n:
  RA (positive/negative)21 (11/9)4 (0/4)8 (3/4)3 (3/0)6 (5/1)
  PsA32010
  axSpA10100
Sex
  Female, n (%)20 (80)6 (100)4 (44)4 (100)6 (100)
Age, years (mean [range])61.8 [28–79]58.8 [47–62]60.0 [28–76]64.3 [51–74]66.0 [51–79]
   ≥ 63 (67d) year , n14 (10)1 (1)6 (4)3 (2)4 (3)
Years since diagnosis (mean [range])14.3 [4–59]8.0 [4–16]17.9 [7–59]13.5 [9–22]15.8 [4–28]
Weekly work hours, n
  Retired or working ≤16 h/week175525
  Working ≥37 h/week81421
Civil status, n
  Married/cohabitant18/24/06/14/04/1
  Living alone41201
  Did not answer11000
Routine attendance in the nurse-led clinic     
  Licenced medication handed out every 8 weeks136610
  Receive infusion every 6–8 weeks60330
  Annual nurse consultation only60006
  1. FG Focus Group, n/N number/Total, % percentage, RA rheumatoid arthritis, PsA psoriatic arthritis, axSpa axial spondyloarthritis
  2. aOne participant accepted dates for both FG1 and FG2 as she forgot and did not show up for the first focus group
  3. bReasons were Illness of own/kids/grandkids (n = 3/2/2), other priorities arose for the day (n = 2) and snow (n = 1)
  4. cUnknown reason
  5. dAverage retirement age in Denmark in 2004 (2018)