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Table 4 Overview of results

From: Patient-Initiated Follow-Up (PIFU) as reorganized support for increased patient involvement – focus group discussions among patients’ with inflammatory arthritis

Patient-Initiated Follow-Up do not affect patients’ perceived support in disease control• Patients are confident in monitoring own arthritis
• Time freed up for patients
• Experience of trust in access to professional support whenever needed
Information is valued by patients to delineate responsibilities in a new patient role• Patients perceived uncertainty in the transition
• Confusion experienced about distribution of responsibilities
Patients need both extended perspectives of their arthritis and focused dialogue• Focused dialogue involves the patient
• Expressed need for professional perspectives from both a rheumatologist and a nurse in managing own health