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Table 2 Sample characteristics

From: Psychometric properties of the PROMIS Preference score (PROPr) in patients with rheumatological and psychosomatic conditions

Variable

Total sample

n = 141

Rheumatology

n = 83

Psychosomatic

n = 58

Age in years, mean ± SD (range)

53.3 ± 16.2 (19–86)

55.2 ± 17.4 (19–86)

50.6 ± 14.1 (24–80)

Sex, n (%)

   

Female

95 (67.4)

58 (69.9)

37 (63.8)

Male

46 (32.6)

25 (30.1)

21 (36.2)

Nationality

   

German

125 (88.7)

72 (86.7)

53(91.7)

Non-German

7 (4.9)

7 (8.4)

0 (00.0)

Unknown

9 (6.4)

4 (4.8)

5 (8.6)

Living status, n (%)

   

With partner

88 (62.4)

53 (63.9)

35 (60.3)

Single

39 (27.7)

24 (28.9)

15 (25.9)

Other

8 (5.7)

5 (6.0)

3 (5.2)

Unknown

6 (4.2)

1 (1.2)

5 (8.6)

Educational level (ISCED 19971), n (%)

   

Doctoral degree or equivalent

3 (2.1)

2 (2.4)

1 (1.7)

Bachelor’s/Master’s degree or equivalent

45 (32.0)

31 (37.3)

14 (24.1)

Degree of post-secondary/tertiary education

43 (30.5)

25 (30.1)

18 (31.0)

Degree of secondary education

12 (8.5)

8 (9.6)

4 (6.9)

Degree of primary education

28 (19.9)

15 (18.1)

13 (22.4)

Without

4 (2.8)

1 (1.2)

3 (5.2)

Unknown

6 (4.2)

1 (1.2)

5 (8.6)

Work status, n (%)

   

Full-time

20 (14.2)

11 (13.3)

9 (15.5)

Part-time

8 (5.7)

7 (8.4)

1 (1.7)

Seeking employment

4 (2.8)

1 (1.2)

3 (5.2)

Not employed (student, retired, freelancer)

48 (34.0)

20 (24.1)

28 (48.3)

Unable to work for health reasons

51 (36.2)

36 (43.4)

15 (25.9)

Unknown

10 (7.1)

5 (6.0)

5 (8.6)

Primary conditions, n (%)

   

Persistent somatoform pain disorder (PSPD)2

  

58 (100.0)

Arthritis

 

19 (22.9)

 

Systemic sclerosis (SScl)

 

17 (20.5)

 

Systemic lupus erythematosus (SLE)

 

13 (15.7)

 

Vasculitis

 

11 (13.3)

 

Others3

 

11 (13.3)

 

Sjogren’s syndrome (SS)

 

9 (10.8)

 

Ormond’s disease

 

3 (3.6)

 

Domain scores, M (SD)

   

EQ-5D-5L Mobility4

2.50 (1.14)

2.34 (1.15)

2.72 (1.09)

EQ-5D-5L Self-care4

1.67 (0.92)

1.63 (0.92)

1.72 (0.93)

EQ-5D-5L Usual Activities4

2.85 (1.26)

2.64 (1.30)

3.16 (1.15)

EQ-5D-5L Pain/Discomfort4

3.02 (1.10)

2.60 (1.01)

3.62 (0.95)

EQ-5D-5L Anxiety/Depression4

2.28 (1.15)

1.87 (0.93)

2.88 (1.19)

PROPr Cognition5

48.18 (6.65)

49.68 (7.13)

46.04 (5.52)

PROPr Depression6

55.39 (9.90)

53.17 (9.19)

58.57 (10.08)

PROPr Fatigue6

57.26 (9.25)

55.13 (9.70)

60.31 (7.67)

PROPr Pain6

62.03 (8.16)

59.72 (8.90)

65.33 (5.56)

PROPr Physical Function5

41.54 (8.59)

42.12 (8.58)

40.69 (8.60)

PROPr Sleep Disturbance6

52.32 (8.24)

50.59 (8.42)

54.79 (7.35)

PROPr Ability to Participate in Social Roles5

44.48 (8.62)

46.57 (9.00)

41.24 (6.91)

Health States Utilities, M (95%CI) [Range]

   

PROPr

0.26 (0.23; 0.29) [− 0.004; 0.955]

0.32 (0.27; 0.36) [0.009; 0.995]

0.18 (0.15; 0.21) [− 0.004; 0.53]

EQ-5D-5L index value (US 5L Value Set)

0.44 (0.38; 0.51) [− 0.425; 1.00]

0.57 (0.50;0.65) [− 0.425; 1.00]

0.26 (0.17; 0.36) [− 0.329; 1.00]

  1. 1International Standard Classification of Education
  2. 2 ICD-10 code F45.4 (International Classification of Disease, 10th revision)
  3. 3Others include: keratitis, orbital tip syndrome, Still’s disease, other myopathy, fever of unknown origin, neoplasm of unknown behavior in the craniopharyngeal duct, acute otitis media, vesicular pityriasis
  4. 4Standard measure to assess general health-related quality of Life (HrQoL) developed by the EuroQoL group, 1 = no impairment, 5 = full impairment
  5. 5PROPr PROMIS domains in theta T-score; 50 = population average; −/+ 10 SD worse/better than population average, higher values indicate better function
  6. 6PROPr PROMIS domains in theta T-score; 50 = population average; −/+ 10 SD worse/better than population average, lower values indicate better function; n = number; M = Mean; SD = standard deviation; CI = confidence interval