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Table 2 Examples of feedback from researchers

From: The Your Rheum story: involvement of young people in rheumatology research

Researcher

Feedback

1

“My thoughts

1. Really welcoming, friendly group

2. Incredibly helpful to get young people’s insight and on both occasions, I have come away with something that has led to a change in our research protocol

3. No negative experiences

4. Excellent resource—thank you.”

2

“It was important to incorporate young people as it made my application a lot stronger…Surprised how keen everyone was to get involved…It has given me the confidence to come back to the group moving forward with research, knowing that I will get a good response…Found it very easy to contact the YR facilitator…Received a lot of responses, and really comprehensive responses.”

3

“Working with Your Rheum was a great experience to receive feedback on our proposed project. The members engaged with the tasks and offered us plenty of helpful and insightful feedback, giving points of view we had not considered. Although the meeting was via zoom due to covid times, I was pleasantly surprised with how willing the young people were to share their points of view and debate each other's ideas.”