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Table 1 Characteristics of participants in 1st and 2nd Phase of pilot and follow-up project

From: Patient involvement in basic rheumatology research at Nijmegen: a three year’s responsive evaluation of added value, pitfalls and conditions for success

Researchers (n = 11)

Patient research partners (n = 8)

Age (range)

33 (24–59)

60 (50–73)

Age

M/F

5/6

2/6

M/F

Country of birth

  

Country of birth

*Netherlands

11

7

*Netherlands

  

1

*Suriname

Education

  

Education

* Lower education

  

*Lower education

* Middle education

 

3

*Middle education

* Higher education

 

4

*Higher education

* Academic education

7

1

*Academic education

* Post-academic education

4

 

*Post-academic education

Job title

  

Diagnosisa

* Team leader/(Ass) Prof

2

5

*Rheumatoid Arthritis

* Post-doctoral researcher

2

1

*Systemic Sclerosis

* PhD student

7

2

*Osteoarthritis

  

1

*MCTD

Years in research (range)

10.1 (2–35)

20 (3–59)

Disease duration years (range)

Experience with PPI

None

  
  1. Ass. = Associate; MCTD = Mixed Connective Tissue Disorder; PPI = Patient and Public Involvement
  2. aMore than one diagnosis possible