Table 4 Facilitators and barriers for successful patient participation in laboratory research
Facilitators | Barriers |
|---|---|
Management of expectations: allowing time to develop realistic expectations Education of principles of patient-researcher collaboration Development of a common language Respectful communication, also during informal breaks Professional support by the coordinator Support by the leadership Enabling 1:1 contact Speed date for ensuring effective researcher-PRP partnerships Adequate reporting and storage of patient and public summaries and information | Complexity of pathogenetic processes for patients Time commitment for researchers Formal setting of monthly team meetings Planning meetings is challenging, due to PRP characteristics (e.g. morning stiffness) Frequency and intensity of 1:1 interactions are vulnerable because of the disease of the PRP |