Fig. 1

Animation stills. A + B Side-by-side comparison of T2T and standard care, C Lucy, the character participating in the T2T cSLE study with parent, D Graph demonstrating continual monitoring towards Lucy’s target. Lucy’s progress is initially good but then her condition declines and new treatment and physiotherapy input is recommend which helps Lucy start to progress again towards her target, E The doctor is patient focused, with parents in the background for support, F + G The doctor uses his knowledge, experiences with past patients, Lucy’s test results, knowledge of whether Lucy’s target has been reached and the results of the patient reported outcome measures (assessing health related quality of life, fatigue and steroid toxicity) to select the best treatment approach for Lucy, H + I Patient reported outcome measures to assess steroid toxicity and fatigue and support the structured assessment of Lucy’s Lupus, J Informational slide providing further contacts for CYP interested in participating in a T2T cSLE study. The images depicted within this figure are the authors own and are taken directly from the animation