Skip to main content

Table 1 Quantitative results of the Researcher (R) Survey (Rs; N = 20)

From: Patient and public involvement in an international rheumatology translational research project: an evaluation

Q1. Which type of organisation do you represent?

 

Academia

EFPIA

SME

Other

    

Number (%) of Rs

15 (75%)

5 (25%)

0 (0%)

0 (0%)

    

Q2. What is your position?

 

Clinical Researcher

Non-clinical Researcher

Other

     

Number (%) of Rs

9 (45%)

10 (50%)

1 (5%)

     

Q3. How much experience of working with patients/public as research partners did you have before your involvement with RTCure?*

 

No experience at all

Slight experience

Moderate experience

A good deal of experience

Extensive experience

   

Number (%) of Rs

5 (25%)

4 (20%)

6 (30%)

2 (10%)

4 (20%)

   

Q4. Which Work Package (WP) have you been most involved in?

 

WP1

WP2

WP3

WP4

WP5

WP6

WP7

 

Number (%) of Rs

2 (10%)

2 (10%)

5 (25%)

4 (20%)

2 (10%)

3 (15%)

2 (10%)

 

Q5. How much do you think that our patient/public research partners have been able to contribute to this Work Package?

 

No contribution at all

Minor contribution

Moderate contribution

Large contribution

Extremely large contribution

   

Number (%) of Rs

3 (15%)

4 (20%)

5 (25%)

7 (35%)

1 (5%)

   

Q6. Which other Work Package(s) have you been involved in (if any)?

 

WP1

WP2

WP3

WP4

WP5

WP6

WP7

None

Number (%) of Rs

0 (0%)

3 (15%)

2 (10%)

3 (15%)

2 (10%)

6 (30%)

0 (0%)

4 (20%)

Q7. How much do you think that our patient/public research partners have been able to contribute to this Work Package?

 

No contribution at all

Minor contribution

Moderate contribution

Large contribution

Extremely large contribution

   

Number (%) of Rs

3 (15%)

5 (25%)

7 (35%)

5 (25%)

0 (0%)

   

Q8. What kind of impact do you think patient and public involvement (PPI) has had on RTCure overall so far?^

 

Extremely small impact

Small impact

Moderate impact

Large impact

Extremely large impact

   

Number (%) of Rs

0 (0%)

9 (45%)

2 (10%)

9 (45%)

0 (0%)

   

Q9. Have you had any experience so far of working with Patient/Public Research Partners during RTCure?

 

Yes

No

      

Number (%) of Rs

15 (75%)

5 (25%)

      

Q11. Has your experience from working with PRPs in RTCure changed your views on working with PPI?

 

Yes

No

Don’t know

     

Number (%) of Rs

6 (30%)

12 (60%)

2 (10%)

     

Q12. Has your experience from working with PRPs in RTCure had any effect on your research perspective/thinking?

 

Yes

No

      

Number (%) of Rs

12 (60%)

8 (40%)

      
  1. EFPIA European Federation of Pharmaceutical Industries and Associations, SME Small-to-medium enterprise
  2. *One person chose two options. ^ ‘Moderate impact’ option erroneously written as ‘no impact’ on original survey; numbers given for ‘moderate impact’ have been adjusted based one person stating in the free text they wanted to choose ‘moderate impact’ and another person ticking both ‘small impact’ and ‘large impact’
  3. Qs 10, 13 & 14 were purely qualitative questions