Table 2 Focus group question and aim
Participant recommendations to improve lupus awareness and social support | Recommendation description |
|---|---|
1. Different people may know or have heard different things about lupus, so I am interested in what you know. When you hear the word “lupus”, what comes to mind? | Gauges lupus awareness |
2. What are the most important things you think people should know about lupus? | Gauges lupus awareness |
3. Who do you think is most affected by lupus? | Gauges lupus awareness |
4. What experiences or information have influenced what you think or know about lupus? | Captures the type of information and/or mode of delivery that was memorable and shaped opinions about lupus-based on personal experience(s) |
5. What types of activities do you believe really work to increase awareness and understanding about lupus? | Captures the type of information and/or mode(s) of delivery that are memorable and opinion-shaping in general-could be based on personal experience(s) or other evidence, factual or perceived |
6. What specific messages and/or ways of sharing information do you believe resonate with young African Americans? | Captures the type of information and/or mode(s) of delivery that are particularly memorable and opinion-shaping for young African Americans-could be based on personal experience(s) or other evidence, factual or perceived |
7. What types of things could keep people from being aware of or understanding lupus? | Captures barriers to information consumption-could be based on personal experience(s) or other evidence, factual or perceived |
8. If you or a family member has lupus, what are some of the most difficult aspects of your or their disease experience? | Captures critical disease components to include in an educational campaign-based on personal experience(s) |
9. Is there anything that we haven’t talked about, but you feel is important to consider in educating young African Americans about lupus? | Captures any perspectives that may have been missed |
10. Thank you for your participation. Do you have any questions, comments, or concerns? | Captures any perspectives that may have been missed |