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Table 4 Recommendations from women with ARDs and health professionals for improving of care and support during pre-conception, pregnancy and early parenting

From: Identifying the unmet information and support needs of women with autoimmune rheumatic diseases during pregnancy planning, pregnancy and early parenting: mixed-methods study

Recommendations

Women (survey and interview)

Health Professionals

Information and communication

Clear information on medication use during pregnancy planning, pregnancy and breastfeeding

High quality written information: pre-conception, pregnancy, post-partum and pre-conception counselling

 

Patient-centered approach. More empowerment and involvement in decisions about medication

The need for a patient-centered approach (shared decision-making) in consultations

Multi-disciplinary management

Multi-disciplinary, proactive and better coordinated care (mainly rheumatology, obstetrics, fertility and mental health services)

More training for health professionals such as health visitors, occupational therapists, and midwives about chronic conditions and their impact

Support

Tailoring of professionally led mother and baby groups to ensure they are suitable for women with a chronic condition which affects mobility

Psychological support provided more widely

Peer-support & information on the experiences of others in a similar situation.

Provision of social care support

More practical support, such as agencies that can provide childcare and home help

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