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Table 3 Patient-reported data collection

From: The BSR-PsA: study protocol for the British Society for Rheumatology psoriatic arthritis register

Domain Items
General information Date of birth; education; smoking status, alcohol consumption; and physical activity.
General health PROMIS Scale v1.2 – Global Health [9]; and GRAPPA/OMERACT visual analogue scales (global, skin and joints) [10].
Axial disease Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) [11].
Sleep, Fatigue and Fibromyalgia Jenkins Sleep Scale [12]; PROMIS Short Form – Fatigue 8a [9]; a general question on fatigue for comparability with other studies (have you had problems with fatigue for more than 3 months?); plus, the 2011 modification of the ACR preliminary diagnostic criteria for fibromyalgia [13].
Quality of life, and Impact of disease Generic instrument (EQ-5D-5L) [14]; plus, the PsA Quality of Life (PsAQoL) [15]; Dermatology Quality of Life Index (DLQI) [16]; and Psoriatic Arthritis Impact of Disease (PsAID) questionnaire [17].
Functional status Health Assessment Questionnaire (HAQ) [18].
Mental health PROMIS Short Form – Anxiety 4a and Depression 4a questionnaires [9] plus, for comparability with other studies, a question on anhedonia taken from the PHQ-9 [19].
Employment status Employment status, and the impact of PsA on employment: Work Productivity and Activity Impairment Questionnaire: Specific Health Problem (WPAI: SHP) [20].