Table 1 Feedback from young people in Your Rheum

1

“During my time in Your Rheum, I have been able to get involved in really cool opportunities such as help with the design of an animated film and work on a research abstract for a PReS [Paediatric Rheumatology European Society] conference. I really enjoyed these opportunities as they allowed me to be involved in exciting work which was very different to anything I had done before, especially the animation. The whole process was really cool and I felt well supported during these activities. Thanks!”

2

“Your Rheum has helped me interact with people who have similar conditions to me. I have had a very positive experience as a Your Rheum member as everyone is very kind and welcoming”

3

“Being part of Your Rheum gives you an insight into current rheumatology research. It helps you become more knowledgeable about your condition and managing it. You might even feel talking to your doctor becomes easier.”

4

“But one of the biggest benefits of being part of Your Rheum, is connecting with other young people like yourself. It’s like a support network. It’s so lovely to share our experiences with one another and not feel alone.”