Table 2 Quantitative results of the Patient/Public Research Partner (PRP) Survey (PRPs; N = 7)

Q1. What kind of impact do you think patient and public involvement (PPI) has had on RTCure overall?*

No impact

Extremely small impact

Small impact

Moderate impact

Large impact

Extremely large impact

Number (%) of PRPs

1 (14.3%)

1 (14.3%)

4 (57%)

0 (0%)

1 (14.3%)

0 (0%)

Q2. Which Work Package have you been most involved in?

WP1

WP2

WP3

WP4

WP5

WP6

WP7

Number (%) of PRPs

0 (0%)

2 (28.6%)

0 (0%)

0 (0%)

1 (14.3%)

2 (28.6%)

2 (28.6%)

Q3. How much do you think you have been able to contribute to this Work Package?

No contribution at all

Minor contribution

Moderate contribution

Large contribution

Extremely large contribution

Number (%) of PRPs

2 (28.6%)

3 (42.9%)

2 (28.6%)

0 (0%)

0 (0%)

Q4. Which other Work Package(s) have you been involved in (if any)?^

WP1

WP2

WP3

WP4

WP5

WP6

WP7

Number (%) of PRPs

2 (28.6%)

3 (42.9%)

2 (28.6%)

2 (28.6%)

0 (0%)

4 (57.1%)

4 (57.1%)

Q5. How much do you think you have been able to contribute to this/these Work Package/s?

No contribution at all

Minor contribution

Moderate contribution

Large contribution

Extremely large contribution

Number (%) of PRPs

2 (28.6%)

3 (42.9%)

2 (28.6%)

0 (0%)

0 (0%)

Q6. Do you think that you have an overall idea/understanding of the goals of the RTCure project?

Do not understand at all

Understand a little

Moderate understanding

Understand a lot

Understand everything

Number (%) of PRPs

0 (0%)

4 (57.1%)

3 (42.9%)

0 (0%)

0 (0%)

Q7. Do you think that you understand how the goals of RTCure might be achieved?

Do not understand at all

Understand a little

Moderate understanding

Understand a lot

Understand everything

Number (%) of PRPs

0 (0%)

5 (71.4%)

2 (28.6%)

0 (0%)

0 (0%)

Q8. What do you think about the number of tasks for Patient/Public Research Partners (PRPs) in RTCure?^§

Far too few

Too few

About the right number

Too many

Far too many

Number (%) of PRPs

2 (28.6%)

1 (14.3%)

5 (71.4%)

1 (14.3%)

0 (0%)

Q9. What do you think about information received on reports or general progress in RTCure?

Far too little information

Too little information

About the right amount of information

Too much information

Far too much information

Number (%) of PRPs

2 (28.6%)

1 (14.3%)

4 (57.1%)

0 (0%)

0 (0%)

Q10. How welcome do you feel your opinions were?

Not at all welcome

Not very welcome

Moderately welcome

Very welcome

Extremely welcome

Number (%) of PRPs

0 (0%)

0 (0%)

5 (71.4%)

2 (28.6%)

0 (0%)

Q11. How well do you feel PRP involvement was coordinated?

Not at all well coordinated

Not very well coordinated

Moderately well coordinated

Very well coordinated

Extremely well coordinated

Number (%) of PRPs

1 (14.3%)

1 (14.3%)

1 (14.3%)

4 (57.1%)

0 (0%)

Q12. What do you think about the amount/usefulness of feedback you received on the outcome of your contribution to different tasks?

Far too little feedback

Too little feedback

About the right amount of feedback

Too much feedback

Far too much feedback

Number (%) of PRPs

1 (14.3%)

4 (57.1%)

2 (28.6%)

0 (0%)

0 (0%)

Q13. How well do you think your attendance in RTCure meetings was facilitated?

Not at all well facilitated

Not very well facilitated

Moderately well facilitated

Very well facilitated

Extremely well facilitated

Number (%) of PRPs

0 (0%)

0 (0%)

2 (28.6%)

5 (71.4%)

0 (0%)

Q14. Has your interest in contributing to future research projects as a PRP changed due to your experience in RTCure?

Yes

No

Number (%) of PRPs

3 (42.9%)

4 (57.1%)

Q18. Has your involvement with the RTCure project had an impact on you, either positive or negative?

Yes

No

Number (%) of PRPs

6 (85.7%)

1 (14.3%)