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BMC Series Focus Issue: Patient and Public Involvement (PPI)

In recognition of World Patient Safety Awareness day on 17th September, the BMC Series presents a focus issue on Patient and Public Involvement (PPI) in research.  We have collated free-to-read content from across our journals - showcasing patient perspectives, research into the study of PPI, and engaging public partners as co-authors in research.

New Content ItemBy sharing this research, we wish to support the UN's Sustainable Development Goals, and highlight content that could make a difference to solving global problems.

Studying and developing tools for PPI

Patient and Public Involvement (PPI) in evidence synthesis: how the PatMed study approached embedding audience responses into the expression of a meta-ethnography
S. Park, N. Khan, F. Stevenson & A. Malpass 
BMC Medical Research Methodology 20, 29 (2020)

A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment
Janelle Applequist, Cristina Burroughs, Artemio Ramirez Jr, Peter A. Merkel, Marc E. Rothenberg, Bruce Trapnell, Robert J. Desnick, Mustafa Sahin & Jeffrey P. Krischer 
BMC Medical Research Methodology 20, 58 (2020)

Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development
Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad & Thomas Abell 
BMC Gastroenterology 16, 107 (2016)

Engaging young people in the design of a sexual reproductive health intervention: Lessons learnt from the Yathu Yathu (“For us, by us”) formative study in Zambia
Melvin Simuyaba, Bernadette Hensen, Mwelwa Phiri, Chisanga Mwansa, Lawrence Mwenge, Mutale Kabumbu, Steve Belemu, Kwame Shanaube, Ab Schaap, Sian Floyd, Sarah Fidler, Richard Hayes, Helen Ayles & Musonda Simwinga 
BMC Health Services Research 21, 753 (2021)

What methods are used to promote patient and family involvement in healthcare regulation? A multiple case study across four countries
Siri Wiig, Suzanne Rutz, Alan Boyd, Kate Churruca, Sophia Kleefstra, Cecilie Haraldseid-Driftland, Jeffrey Braithwaite, Jane O’Hara & Hester van de Bovenkamp 
BMC Health Services Research 20, 616 (2020)

Person-centred care in practice: perspectives from a short course regimen for multi-drug resistant tuberculosis in Karakalpakstan, Uzbekistan
Shona Horter, Beverley Stringer, Nell Gray, Nargiza Parpieva, Khasan Safaev, Zinaida Tigay, Jatinder Singh & Jay Achar 
BMC Infectious Diseases 20, 675 (2020)

Patient and public perspectives

Including ‘seldom heard’ views in research: opportunities, challenges and recommendations from focus groups with British South Asian people with type 2 diabetes
Suman Prinjha, Nasima Miah, Ebrahim Ali & Andrew Farmer 
BMC Medical Research Methodology 20, 157 (2020)

Patients’ preferences for involvement in the decision-making process for treating diabetic retinopathy
Lydia Marahrens, Raimar Kern, Tjalf Ziemssen, Andreas Fritsche, Peter Martus, Focke Ziemssen & Daniel Roeck 
BMC Ophthalmology 17, 139 (2017)

A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study
Marianna Vitaloni, Angie Botto-van Bemden, Rosa Sciortino, Xavier Carné, Maritza Quintero, Pedro Santos-Moreno, Rolando Espinosa, Oscar Rillo, Jordi Monfort, Francisco de Abajo, Elizabeth Oswald, Marco Matucci, Patrick du Souich, Ingrid Möller, Montserrat Romera Baures, Arlene Vinci, Deborah Scotton, Marco Bibas, Guy Eakin & Josep Verges 
BMC Musculoskeletal Disorders 21, 727 (2020)

Patient perspectives of target weight management and ultrafiltration in haemodialysis: a multi-center survey
David Keane, Megan Glyde, Indranil Dasgupta, Claire Gardiner, Elizabeth Lindley, Sandip Mitra, Nicholas Palmer, Louise Dye, Mark Wright & Ed Sutherland 
BMC Nephrology 22, 188 (2021)

Characterization of self-anticipated pain score prior to elective surgery - a prospective observational study
Wei-Shu Chang, Yi-Ting Hsieh, Moa-Chu Chen, Shu-Ching Chang, Tzu-Shan Chen, Yun-Chi Chang, Yu-Chuan Tsai & Chen-Fuh Lam 
BMC Anesthesiology 21, 85 (2021)

Patient and academic research co-productions

Shared decision making in pregnancy in inflammatory bowel disease: design of a patient orientated decision aid
Astrid-Jane Williams, Neda Karimi, Radha Chari, Susan Connor, Mary A. De Vera, Levinus A. Dieleman, Tawnya Hansen, Kathleen Ismond, Rshmi Khurana, Dawn Kingston, Katie O’Connor, Daniel C. Sadowski, Flora Fang-Hwa, Eytan Wine, Yvette Leung & Vivian Huang 
BMC Gastroenterology 21, 302 (2021)

A designathon to co-create community-driven HIV self-testing services for Nigerian youth: findings from a participatory event
Kadija M. Tahlil, Chisom Obiezu-Umeh, Titi Gbajabiamila, Ucheoma Nwaozuru, David Oladele, Adesola Z. Musa, Ifeoma Idigbe, Jane Okwuzu, Agatha N. David, Tajudeen A. Bamidele, Collins O. Airhihenbuwa, Nora E. Rosenberg, Weiming Tang, Jason J. Ong, Donaldson F. Conserve, Juliet Iwelunmor, Oliver Ezechi & Joseph D. Tucker 
BMC Infectious Diseases 21, 505 (2021)

Patients’ preferences for involvement in the decision-making process for treating diabetic retinopathy
Lydia Marahrens, Raimar Kern, Tjalf Ziemssen, Andreas Fritsche, Peter Martus, Focke Ziemssen & Daniel Roeck 
BMC Ophthalmology 17, 139 (2017)

Researchers’ perspectives on methodological challenges and outcomes selection in interventional studies targeting medication adherence in rheumatic diseases: an OMERACT-adherence study
Shahrzad Salmasi, Ayano Kelly, Susan J. Bartlett, Maarten de Wit, Lyn March, Allison Tong, Peter Tugwell, Kathleen Tymms, Suzanne Verstappen & Mary A. De Vera On behalf of the OMERACT-Adherence working group
BMC Rheumatology 5, 26 (2021)

Patient involvement to inform the design of a clinical trial in postbariatric hypoglycaemia
Matthias Hepprich, Marc Y. Donath & Lars G. Hemkens 
BMC Medicial Research Methodology 20, 290 (2020)