Scott DL, Wolfe F, Huizinga TWJ. Rheumatoid Arthritis. Lancet. 2010;376:1094–108.
Article
PubMed
Google Scholar
Shih M, Hootman JM, Strine TW, Chapman DP, Brady TJ. Serious psychological distress in U.S. adults with arthritis. J Gen Intern Med. 2006;21(11):1160–6.
Article
PubMed Central
PubMed
Google Scholar
Matcham F, Rayner L, Steer S, Hotopf M. The prevalence of depression in rheumatoid arthritis: a systematic review and meta-analysis. Rheumatology. 2013;52(12):2136–48.
Article
PubMed Central
PubMed
Google Scholar
el-Miedany YM, el-Rasheed AH. Is anxiety a more common disorder than depression in rheumatoid arthritis? Joint Bone Spine. 2002;69(3):300–6.
Article
PubMed
Google Scholar
Herschbach P, Keller M, Knight L, Brandl T, Huber B, Henrich G, et al. Psychological problems of cancer patients: a cancer distress screening with a cancer-specific questionnaire. Br J Cancer. 2004;91(3):504–11.
Article
CAS
PubMed Central
PubMed
Google Scholar
Haun MW, Sklenarova H, Brechtel A, Herzog W, Hartmann M. Distress in cancer patients and their caregivers and association with the caregivers’ perception of dyadic communication. Oncol Res Treat. 2014;37(7–8):384–8.
PubMed
Google Scholar
Book K, Marten-Mittag B, Henrich G, Dinkel A, Scheddel P, Sehlen S, et al. Distress screening in oncology-evaluation of the Questionnaire on Distress in Cancer Patients-short form (QSC-R10) in a German sample. Psychooncology. 2011;20(3):287–93.
Article
PubMed
Google Scholar
Dennick K, Sturt J, Hessler D, Purssell E, Hunter B, Oliver J, et al. High rates of elevated diabetes distress in research populations: a systematic review and meta-analysis. Int Diabetes Nurs. 2015;12(3):93–107.
Article
Google Scholar
Woodward S, Dibley L, Coombes S, Bellamy A, Clark C, Czuber-Dochan W, et al. Identifying disease-specific distress in patients with inflammatory bowel disease. Br J Nurs. 2016;25(12):649–60.
Article
PubMed
Google Scholar
Association AP. Diagnostic and statistical manual of mental disorders: DSM-5. Arlington: American Psychiatric Association; 2013.
Book
Google Scholar
Fisher L, Skaff MM, Mullan JT, Arean P, Mohr D, Masharani U, et al. Clinical depression versus distress among patients with type 2 diabetes: not just a question of semantics. Diabetes Care. 2007;30(3):542–8.
Article
PubMed
Google Scholar
Fisher L, Mullan JT, Arean P, Glasgow RE, Hessler D, Masharani U. Diabetes distress but not clinical depression or depressive symptoms is associated with glycemic control in both cross-sectional and longitudinal analyses. Diabetes Care. 2010;33(1):23–8.
Article
PubMed
Google Scholar
Sturt J, Dennick K, Hessler D, Hunter BM, Oliver J, Fisher L. Effective interventions for reducing diabetes distress: systematic review and meta-analysis. Int Diabetes Nurs. 2015;12:40–55.
Article
Google Scholar
Schmidt CB, van Loon BJP, Vergouwen ACM, Snoek FJ, Honig A. Systematic review and meta-analysis of psychological interventions in people with diabetes and elevated diabetes-distress. Diabetes Med. 2018;35(9):1157–72.
Article
Google Scholar
Fisher L, Polonsky WH, Hessler D. Addressing diabetes distress in clinical care: a practical guide. Diabetes Med. 2019;36(7):803–12.
CAS
Google Scholar
Hofmann D, Ibrahim F, Rose D, Scott DL, Cope A, Wykes T, et al. Expectations of new treatment in rheumatoid arthritis: developing a patient-generated questionnaire. Health Expect. 2015;18(5):995–1008.
Article
PubMed
Google Scholar
Yazdany J, Trupin L, Gansky SA, Dall’Era M, Yelin EH, Criswell LA, et al. Brief index of lupus damage: a patient-reported measure of damage in systemic lupus erythematosus. Arthritis Care Res. 2011;63(8):1170–7.
Article
Google Scholar
Dibley L, Czuber-Dochan W, Woodward S, Wade T, Bassett P, Sturt J, Norton C; IBD-DS Patient and Public Involvement Team. Development and Psychometric Properties of the Inflammatory Bowel Disease Distress Scale (IBD-DS): A New Tool to Measure Disease-Specific Distress. Inflamm Bowel Dis. 2018;24(9):2068–77.
Polonsky WH, Fisher L, Earles J, Dudl RJ, Lees J, Mullan J, et al. Assessing psychosocial distress in diabetes: development of the diabetes distress scale. Diabetes Care. 2005;28(3):626–31.
Article
PubMed
Google Scholar
Rothrock N, Kaiser K, Cella D. Developing a valid patient-reported outcome measure. Clin Pharmacol Ther. 2011;90(5):737–42.
Article
CAS
PubMed
Google Scholar
Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.
Article
PubMed
Google Scholar
Prothero L, Georgopoulou S, Galloway J, Williams R, Bosworth A, Lempp H. Patients’ and carers’ views and expectations about intensive management for moderate rheumatoid arthritis: a qualitative study. Psychol Health Med. 2016;21(8):918–25.
Article
CAS
PubMed
Google Scholar
Pollard LC, Graves H, Scott DL, Kingsley GH, Lempp H. Perceived barriers to integrated care in rheumatoid arthritis: views of recipients and providers of care in an inner-city setting. BMC Musculoskelet Disord. 2011;12:19.
Article
PubMed Central
PubMed
Google Scholar
Campbell R, Hofmann D, Hatch S, Gordon P, Lempp H. Muscle disorders111. The impact of fatigue in patients with idiopathic inflammatory myopathy: a mixed method study. Rheumatology. 2012;51(suppl_3):iii93–139.
Google Scholar
Bearne L, D’Cruz D, Nel L, Georgopoulou S, Andrews J, Bieles J, et al. OP0268 HPR. The prevalence and impact of fatigue and physical activity in people with primary antiphospholipid syndrome: a mixed methods study. Ann Rheum Dis. 2019;78:215.
Carlsen B, Glenton C. What about N? A methodological study of sample-size reporting in focus group studies. BMC Med Res Methodol. 2011;11(26):1–10.
Google Scholar
Peterson C, Peterson N, Powell K. Cognitive interviewing for item development: validity evidence based on content and response processes. Meas Eval Couns Dev. 2017;50(4):217–23.
Article
Google Scholar
Rattray J, Jones MC. Essential elements of questionnaire design and development. J Clin Nurs. 2007;16(2):234–43.
Article
PubMed
Google Scholar
Cheung Y-B, Wong L-C, Tay M-H, Toh C-K, Koo W-H, Epstein R, et al. Order effects in the assessment of quality of life in cancer patients. Qual Life Res. 2004;13(7):1217–23.
Article
PubMed
Google Scholar
Thomas D. Feedback from research participants: are member checks useful in qualitative research? Qual Res Psychol. 2017;14(1):23–41.
Article
Google Scholar
Ahmed N, Bestall JC, Payne SA, Noble B, Ahmedzai SH. The use of cognitive interviewing methodology in the design and testing of a screening tool for supportive and palliative care needs. Support Care Cancer. 2009;17(6):665–73.
Article
PubMed
Google Scholar
Drennan J. Cognitive interviewing: verbal data in the design and pretesting of questionnaires. J Adv Nurs. 2003;42(1):57–63.
Article
PubMed
Google Scholar
Beatty P, Willis G. Research synthesis: the practice of cognitive interviewing. Public Opin Q. 2007;71(2):287–311.
Article
Google Scholar
Mero-Jaffe I. “Is that what I said?” Interview transcript approval by participants: an aspect of ethics in qualitative research. Int J Qual Methods. 2011;10(3):231–47.
Article
Google Scholar
Duarte C, Santos EJF, Ferreira RJO, Kvien TK, Dougados M, de Wit M, et al. Validity and reliability of the EULAR instrument RAID.7 as a tool to assess individual domains of impact of disease in rheumatoid arthritis: a cross-sectional study of 671 patients. RMD Open. 2021;7(1):e001539.
Article
PubMed Central
PubMed
Google Scholar
Polonsky WH, Anderson BJ, Lohrer PA, Welch G, Jacobson AM, Aponte JE, et al. Assessment of diabetes-related distress. Diabetes Care. 1995;18(6):754–60.
Article
CAS
PubMed
Google Scholar
Herschbach P, Marten-Mittag B, Henrich G. Revision und psychometrische Prufung des Fragebogens zur Belastung von Krebskranken (FBK-R23). Zeitschrift für Medizinishe Psychologie 2003;12:69–76.
Zangi H, Hauge M, Steen E, Finset A, Hagen K. “I am not only a disease, I am so much more”. Patients with rheumatic diseases’ experiences of an emotion-focused group intervention. Patient Educ Couns. 2011;85:419–24.
Article
PubMed
Google Scholar
Dennick K, Sturt J, Speight J. What is diabetes distress and how can we measure it? A narrative review and conceptual model. J Diabetes Complicat. 2017;31(5):898–911.
Article
Google Scholar
Dickens C, McGowan L, Clark-Carter D, Creed F. Depression in rheumatoid arthritis: a systematic review of the literature with meta-analysis. Psychosom Med. 2002;64(1):52–60.
Article
PubMed
Google Scholar
Smedstad LM, Vaglum P, Kvien TK, Moum T. The relationship between self-reported pain and sociodemographic variables, anxiety, and depressive symptoms in rheumatoid arthritis. J Rheumatol. 1995;22(3):514–20.
CAS
PubMed
Google Scholar
Sturt J, Dennick K, Due-Christensen M, McCarthy K. The detection and management of diabetes distress in people with type 1 diabetes. Curr Diabates Rep. 2015;15(11):101.
Article
CAS
Google Scholar
Fisher L, Polonsky WH, Hessler DM, Masharani U, Blumer I, Peters AL, et al. Understanding the sources of diabetes distress in adults with type 1 diabetes. J Diabetes Complicat. 2015;29(4):572–7.
Article
Google Scholar
Perrin NE, Davies MJ, Robertson N, Snoek FJ, Khunti K. The prevalence of diabetes-specific emotional distress in people with Type 2 diabetes: a systematic review and meta-analysis. Diabetes Med. 2017;34(11):1508–20.
Article
CAS
Google Scholar
Chew BH, Vos RC, Metzendorf MI, Scholten R, Rutten G. Psychological interventions for diabetes‐related distress in adults with type 2 diabetes mellitus. Cochrane Database Syst Rev. 2017(9).
https://doi.org/10.1002/14651858.CD011469.pub2.
Mathiesen AS, Egerod I, Jensen T, Kaldan G, Langberg H, Thomsen T. Psychosocial interventions for reducing diabetes distress in vulnerable people with type 2 diabetes mellitus: a systematic review and meta-analysis. Diabetes Metab Syndr Obes. 2019;12:19–33.
Article
PubMed
Google Scholar
Teo I, Krishnan A, Lee GL. Psychosocial interventions for advanced cancer patients: a systematic review. Psychooncology. 2019;28(7):1394–407.
Article
PubMed
Google Scholar
Raingruber B. The effectiveness of psychosocial interventions with cancer patients: an integrative review of the literature (2006–2011). ISRN Nurs. 2011;2011;638218
Prothero L, Barley E, Galloway J, Georgopoulou S, Sturt J. The evidence base for psychological interventions for rheumatoid arthritis: a systematic review of reviews. Int J Nurs Stud. 2018;82:20–9.
Article
PubMed
Google Scholar
Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2015;26:1753–60.
Article
Google Scholar
Kvien TK, Uhlig T, Odegard S, Heiberg MS. Epidemiological aspects of rheumatoid arthritis: the sex ratio. Ann N Y Acad Sci. 2006;1069:212–22.
Article
PubMed
Google Scholar
National Institute for Health and Care Excellence. Rheumatoid arthritis in adults: management NICE guidelines (NG100) (2018). https://www.nice.org.uk/guidance/ng100.
Yilmaz V, Umay E, Gundogdu I, Karaahmet ZO, Ozturk AE. Rheumatoid Arthritis: are psychological factors effective in disease flare? Eur J Rheumatol. 2017;4(2):127–32.
Article
PubMed Central
PubMed
Google Scholar