Lam NC, Ghetu MV, Bieniek ML. Systemic lupus erythematosus: primary care approach to diagnosis and management. Am Fam Phys. 2016;94:284–94.
Google Scholar
Clowse ME, Grotegut C. Racial and ethnic disparities in the pregnancies of women with systemic lupus erythematosus. Arthritis Care Res (Hoboken). 2016;68:1567–72.
Article
Google Scholar
Carter EE, Barr SG, Clarke AE. The global burden of SLE: prevalence, health disparities and socioeconomic impact. Nat Rev Rheumatol. 2016;12:605–20.
Article
Google Scholar
] Korbet SM, Schwartz MM, Evans J, Lewis EJ, Collaborative Study G. Severe lupus nephritis: racial differences in presentation and outcome. J Am Soc Nephrol. 2007;18:244–54
Demas KL, Costenbader KH. Disparities in lupus care and outcomes. Curr Opin Rheumatol. 2009;21(2):102–9. https://doi.org/10.1097/BOR.0b013e328323daad.
Article
Google Scholar
Lupus facts and statistics. 2016. https://www.lupus.org/resources/lupus-facts-and-Statistics. Accessed March 2019.
Somers EC, Marder W, Cagnoli P, et al. Population-based incidence and prevalence of systemic lupus erythematosus: the Michigan Lupus Epidemiology and Surveillance program. Arthritis Rheumatol. 2014;66:369–78.
Article
Google Scholar
Lim SS, Bayakly AR, Helmick CG, Gordon C, Easley KA, Drenkard C. The incidence and prevalence of systemic lupus erythematosus, 2002–2004: the Georgia Lupus Registry. Arthritis Rheumatol. 2014;66:357–68.
Article
Google Scholar
Lim SS, Drenkard C. Epidemiology of lupus: an update. Curr Opin Rheumatol. 2015;27:427–32.
Article
Google Scholar
Pons-Estel GJ, Alarcon GS, Scofield L, Reinlib L, Cooper GS. Understanding the epidemiology and progression of systemic lupus erythematosus. Semin Arthritis Rheum. 2010;39:257–68.
Article
Google Scholar
Campbell R Jr, Cooper GS, Gilkeson GS. Two aspects of the clin ical and humanistic burden of systemic lupus erythematosus: mortality risk and quality of life early in the course of disease. Arthritis Rheum. 2008;59:458–64.
Article
Google Scholar
Jordan JM. Effect of race and ethnicity on outcomes in arthritis and rheumatic conditions. Curr Opin Rheumatol. 1999;11(2):98–103.
Article
CAS
Google Scholar
Williams EM, Bruner L, Adkins A, et al. I too, am America: a review of research on systemic lupus erythematosus in African-Americans. Lupus Sci Med. 2016;3:e000144.
Article
Google Scholar
Williams EM, Ortiz K, Flournoy-Floyd M, Bruner L, Kamen D. Systemic lupus erythematosus observations of travel burden: a qualitative inquiry. Int J Rheum Dis. 2015;18:751–60.
Article
Google Scholar
Anderson E, Nietert PJ, Kamen DL, Gilkeson GS. Ethnic disparities among patients with systemic lupus erythematosus in South Carolina. J Rheumatol. 2008;35:819–25.
Google Scholar
Ippolito A, Petri M. An update on mortality in systemic lupus erythematosus. Clin Exp Rheumatol. 2008;26:S72–9.
CAS
Google Scholar
Gianfrancesco MA, Balzer L, Taylor KE, et al. Genetic risk and longitudinal disease activity in systemic lupus erythematosus using targeted maximum likelihood estimation. Genes Immun. 2016;17:358–62.
Article
CAS
Google Scholar
Cooper GS, Dooley MA, Treadwell EL, St Clair EW, Parks CG, Gilkeson GS. Hormonal, environmental, and infectious risk factors for developing systemic lupus erythematosus. Arthritis Rheum. 1998;41:1714–24.
Article
CAS
Google Scholar
Williams EM, Zhang J, Zhou J, Kamen D, Oates JC. Predictors of non-response and non-compliance in African American lupus patients: findings from the balancing lupus experiences with stress strategies (BLESS) study. Int J Med Biomed Sci. 2014;2:6–19.
Google Scholar
Williams EM, Penfield M, Kamen D, Oates JC. An intervention to reduce psychosocial and biological indicators of stress in African American lupus patients: the balancing lupus experiences with stress strategies study. Open J Prev Med. 2014;4:22–31.
Article
Google Scholar
Williams EM, Kamen D, Penfield M, Oates JC. Stress intervention and disease in African American lupus patients: the balancing lupus experiences with stress strategies (BLESS) study. Health (Irvine Calif). 2014;6:71–9.
Google Scholar
Williams EM, Bruner L, Penfield M, Kamen D, Oates JC. Stress and depression in relation to functional health behaviors in African American patients with systemic lupus erythematosus. Rheumatology (Sunnyvale). 2014;2014:005.
Google Scholar
Williams EM, Ortiz K, Browne T. Social determinants of health, the chronic care model, and systemic lupus erythematosus. Int J Chronic Dis. 2014;2014:361792.
Google Scholar
Nee R, Jindal RM, Little D, et al. Racial differences and income disparities are associated with poor outcomes in kidney transplant recipients with lupus nephritis. Transplantation. 2013;95:1471–8.
Article
Google Scholar
Freedman BI, Langefeld CD, Andringa KK, et al. End-stage renal disease in African Americans with lupus nephritis is associated with APOL1. Arthritis Rheumatol. 2014;66:390–6.
Article
CAS
Google Scholar
Bruce IN, O’Keeffe AG, Farewell V, et al. Factors associated with damage accrual in patients with systemic lupus erythematosus: results from the Systemic Lupus International Collaborating Clinics (SLICC) Inception Cohort. Ann Rheum Dis. 2015;74:1706–13.
Article
CAS
Google Scholar
Zhang J, Gonzalez LA, Roseman JM, Vila LM, Reveille JD, Alarcon GS. Predictors of the rate of change in disease activity over time in LUMINA, a multiethnic US cohort of patients with systemic lupus erythematosus: LUMINA LXX. Lupus. 2010;19:727–33.
Article
CAS
Google Scholar
Chae DH, Drenkard CM, Lewis TT, Lim S. Discrimination and cumulative disease damage among African American women with systemic lupus erythematosus. Am J Public Health. 2015;105:2099–107.
Article
Google Scholar
Yazdany J, Gillis JZ, Trupin L, et al. Association of socioeconomic and demographic factors with utilization of rheumatology subspecialty care in systemic lupus erythematosus. Arthritis Rheum. 2007;57:593–600.
Article
Google Scholar
Walunas TL, Jackson KL, Chung AH, et al. Disease outcomes and care fragmentation among patients with systemic lupus erythematosus. Arthritis Care Res (Hoboken). 2017;69:1369–76.
Article
Google Scholar
Kurt A, Semler L, Jacoby JL, et al. Racial differences among factors associated with participation in clinical research trials. J Racial Ethn Health Disparities. 2016;4:827–36.
Article
Google Scholar
Alarcon GS, McGwin G Jr, Petri M, et al. Time to renal disease and end-stage renal disease in PROFILE: a multiethnic lupus cohort. PLoS Med. 2006;3:e396.
Article
Google Scholar
Phillip CR, Mancera-Cuevas K, Leatherwood C, Chmiel JS, Erickson DL, Freeman E, Granville G, Dollear M, Walker K, McNeil R, Correia C, Canessa P, Ramsey-Goldman R, Feldman CH. Implementation and dissemination of an African American popular opinion model to improve lupus awareness: an academic-community partnership. Lupus. 2019;28(12):1441–51. https://doi.org/10.1177/0961203319878803.
Article
CAS
Google Scholar
Rosenstock IM. Historical origins of the health belief model. Health Educ Monogr. 1974;2(4):328–35.
Article
Google Scholar
Creswell JW. Qualitative inquiry and research design: choosing among five approaches. Thousand Oaks: Sage Publications, Inc; 2013.
Google Scholar
Patton MQ. Qualitative research and evaluation methods. Thousand Oaks: Sage Publications, Inc; 2002.
Google Scholar
Ulin PR, Robinson ET, Tolley EE. Qualitative methods in public health: a field guide for applied research. San Francisco: Jossey-Bass A Wiley Imprint; 2005.
Google Scholar
MAXQDA, software for qualitative data analysis, VERBI Software – Consult – Sozialforschung GmbH. Berlin; 2018.
Kuwana M, Kaburaki J, Arnett FC, Howard RF, Medsger TA Jr, Wright TM. Influence of ethnic background on clinical and serologic features in patients with systemic sclerosis and anti-DNA topoisomerase I antibody. Arthritis Rheum. 1999;42(3):465–74.
Article
CAS
Google Scholar
Fiehn C, et al. Improved clinical outcome of lupus nephritis during the past decade: importance of early diagnosis and treatment. Ann Rheum Dis. 2003;62(5):435–9.
Article
CAS
Google Scholar
Fiehn C. Early diagnosis and treatment in lupus nephritis: how we can influence the risk for terminal renal failure. J Rheumatol. 2006;33(8):1464–6.
Google Scholar
Faurschou M, Starklint H, Halberg P, Jacobsen S. Prognostic factors in lupus nephritis: diagnostic and therapeutic delay increases the risk of terminal renal failure. J Rheumatol. 2006;33(8):1563–9.
Google Scholar
Feldman CH, Bermas BL, Zibit M, et al. Designing an intervention for women with systemic lupus erythematosus from medically underserved areas to improve care: a qualitative study. Lupus. 2013;22:52–62.
Article
CAS
Google Scholar